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It may be that you are approaching treatment. Swallowing became slightly more difficult too, though sometimes it can just "feel" as if your throat is closing. I chose to have them removed (not an option to rush into!) partly because I was also having so many mouth/throat infections. The usual painkillers helped but not completely.Īlso, my throat began to feel it was closing up as my tonsils began to enlarge - so worth getting them checked. After a few years the nodes became a little more painful especially those pressing on nerves in the groin and neck. I, too, was first diagnosed in the intermediate stage with enlarged lymph nodes. You have received lots of advice to your question - probably because our bodies are all different - and what works for one person may not for another. I'm not sure if this will help but I think what I'm trying to say is it's probably a lot more common than is apparent and whilst it's difficult to manage the pain and discomfort it most likely isn't too serious as an isolated symptom and in the greater context of the illness (my opinion not authoritative). I'm due to see my consultant in a couple of weeks and intend discussing this in more detail but in my case I think I'm just going to have to put up with it for now. I really don't want to live on pain killers that don't appear to be beneficial (I'm sure the day will come when I'll need them for real!!!). i was also told to come back when they are the size of a plumb or small tomato! On the pain killer front, having tried most of those readily available, I haven't found any that have any great affect so I've decided to try and live with the pain/discomfort as best I can only taking pain killers when absolutely necessary, I think more for the placebo effect than anything else. The advice I was given by my consultant was not to worry as other indicators aren't progressing at any great rate and to' take two paracetamol when needed'.

I've found heat works especially those in and and around joints - I get my wife to place her hand on one in the crease of my elbow and it really does feel better after!! I think this is all part of living life with CLL lingering in the background. I currently have a problem with my groin which is affecting my ability to some things as I would do normally. Mine are affected by exercise and body strain encountered in just living my day to day life. Since diagnosis I have found them in more and more places and where I was previously aware that there was one there are now, on occasion, several.

They are always there and continually swell and reduce presumably dependant upon what infection I'm fighting. Mine were apparent in my neck prior to diagnosis back in late 2012 (traced back to early 2011 via previous bloods). I've been told that they should be painless! I've also had the 'closing off' feeling in my throat from time to time. I am stage A, on watch and wait and always suffer with painful nodes albeit mine appear a little smaller - those that I can feel are probably 1 - 1.5cm although a CT scan at diagnosis revealed others somewhat larger. Similar thing here, if you're like me it gets you down from time to time.